Farrah was diagnosed with CDG 1A at the age of eight months. She lived in Fort Nelson, British Columbia where she battled this rare disorder. Her parents Jason and Kelsey had bracelets made to help fund research and to raise awareness of CDG. Please help support children like Farrah who live with CDG by purchasing one of these bracelets for $5. All profits will go directly to CDG research. To get your bracelet please contact firstname.lastname@example.org.
Saint John Regional Hospital Foundation
Level One, Saint John Regional Hospital
400 University Avenue
P.O. Box 2100
Saint John, New Brunswick, Canada
The FoG, a local not-for-profit, supports research on the development of therapies targeting Congenital Disorders of Glycosylation (CDG), helps raise awareness of the disorder, and advocates for individuals living with these rare enzyme deficiencies.